Monday, July 20, 2009

July 20, 2009

Well, here I go again not "blogging" for a long period of time again. Sorry about that. I'm not sure if not writing is a good thing or a bad thing. The good thing is that it means not much is going on in the "Anne front" (Praise God for that), and the bad thing is that I guess I'm pretty lazy, or too many other things have taken control of my time.

Anne was discharged from the hospital July 12th from her "febrile neutropenia", and has done remarkably well. No complications like further fevers, nausea, vomiting, etc, but she has been a bit more tired lately. I actually took last Wednesday off rather than go to Traverse City to watch some guy (an orthopod) do a couple of surgeries I'm thinking of adding to my toolbox. Under the circumstances, I thought that could wait, and I thought I could better use my time by giving it to Anne. She was unfortunately unable to get her chemo last Monday (her birthday!) because Dr. Balcueva wanted to give her body a rest after the fevers, and because she was on some antibiotics. The good thing about that was that we got to go out to dinner for her birthday which we wouldn't have done had she gotten the chemo. Her parents had made the trip to be with her for the chemo, so they got to be with her for her birthday as well, which was nice. Her parents went home on Tuesday, so we had the day to ourselves on Wednesday (Heather had to work). We went down to the Sommerset Mall (they call it a "Collection" so they can charge more), and Anne was able to get some new clothes. I had hoped it would raise her spirits a bit to get some new stuff as well, as the time in the hospital got us both down a bit. Unfortunately, the trip pooped her out so Thursday she didn't do much, but had a nice visit from one of our friends who brought us some mighty-good tasting home-made manicotti and brownies.

Anne did get her chemo today, probably in record time. It seems that they are able to give her the stuff faster, so she spends less time at Dr. Balcueva's office, because she tolerates it so well. Anne's labs were good--white blood cell count and neutrophil count were normal, and her hemoglobin was only a little low (for her) at 10.7. Unfortunately, the woman sitting next to her was a pessimist, giving her all sorts of bad news about colon cancer that no one needs to hear. All I can think is that this lady has no faith in God. Too bad for her, but it may be an opportunity for Anne to witness to her. (Instead, you must worship Christ as Lord of your life. And if someone asks about your Christian hope, always be ready to explain it.~1 Peter 3:15, NLT)

Here's a reading from 2 Corinthians 1:4-6 that addresses this as well:

He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us. For the more we suffer for Christ, the more God will shower us with his comfort through Christ. Even when we are weighed down with troubles, it is for your comfort and salvation! For when we ourselves are comforted, we will certainly comfort you. Then you can patiently endure the same things we suffer.

I have been hoping that this blog has helped someone out there to be comforted by what we (mostly Anne) have been going through and that they will give themselves to Christ to take on the burden of their problem, whether it be cancer or some other medical issue, or a troubled family, or anything that they can't (and shouldn't) try to face alone. I had to watch a Woody Allen film for the Centurions titled "Crimes and Misdemeanors". It was a typically slow Woody Allen film with lots of dialog and some action, but not much. He says in the movie at one point to another actor who had recently conspired to kill a mistress, who basically told him he didn't believe in God: "Why would you want all of that responsibility for yourself". In other words, God is big enough to take our trouble on His shoulders so that we can be lifted of that burden and don't have to carry it ourselves. To me, that is so awesome. Now, when people ask how I'm doing, I can honestly say I'm doing well, since God is taking care of Anne for me. My "yoke is light". I only have to concentrate on making her comfortable, and making sure she gets the best attention here--God will take care of the rest. Jesus is the "Great Physician"--I just work for Him!

God Bless,
Tony

Sunday, July 12, 2009

July 12, 2009

Thank God! Anne's home! And doing well, I might add. Her fever has broken, cultures were all negative, and she feels well. Her "febrile neutropenia" is what caused the fevers. Her neutrophils and WBCs are way up. She will hopefully be getting her 6th chemo treatment tomorrow, which, by the way, is her birthday. 39 (again!). Her nurses were wonderful, and as much as I'm partial to the orthopaedic nurses I usually work with, these women were excellent at their jobs, caring, loving and very professional. They spent a lot of time with Anne making sure she was comfortable and well-taken care of. God Bless them. They made a long hospital stay (at least it seemed long) very comfortable.

Unfortunately, I had to cancel my trip to my Centurions residency this weekend. I was supposed to leave Friday morning and return Sunday night, but I couldn't leave Anne. Actually, I was then able to spend all 3 days with her since I wasn't supposed to be here anyway. I was worried that I might have to resign from the program since this was a very important residency, but thank God, they totally understand, and I can get the lectures on-line that I missed. It'll take quite a bit of time to make it all up, but I'll get it done (with God's help).

A dear friend, Lois Dewald, sent me the following poem:

The Mystery of prayer .
.
Beyond that
which words can interpet
or theology can explain
the soul
feels a " shower of refreshment "
that falls like the gentle rain
on hearts that are parched
with problems
& are searching to find the way
to some how attract God's attention
through well- chosen words as they pray ,
not knowing that God
in his wisdom
can sense all man's worry & woe .
For there is NOTHING man can conceal
that God does not already KNOW ....
so kneel in prayer in his presence
& you'll find no need to speak
for softly in silent communion
God grants you
the peace that you seek ,,


I am totally convinced that even though God knows all things, including our fate, I do believe that He hears our prayers and will certainly answer our prayers if they prayed in faith.

God Bless,
Tony

Thursday, July 9, 2009

July 9, 2009

Hello. Sorry I haven't been doing much blogging lately (www.debarifamily.blogspot.com) but there fortunately hasn't been too much to report on. Anne has been doing very well. Her liver is shrinking in size, 3 out of 4 of her liver function studies are normal (one of the enzymes is still slightly elevated), and her CEA level (a cancer marker) is down from nearly 3700 to in the 200's--a dramatic decrease. In fact, Dr. Balcueva, her oncologist here in Saginaw, thought we should go back out to Mayo Clinic to have them reassess things--instead of palliative care, I believe he thinks we can go for a cure--which of course, we know will happen, thanks to God, and all of your prayers. Anne got her chemo on June 29th without any problems. She has been having a bit more abdominal pain than usual, but other than that, everything was going along as planned.

This past Tuesday, her WBC count (1.9) and neutrophil count (0.6) were pretty low, but she has otherwise been feeling fine. Last night, however, she developed a fever of 102.5. It improved with tylenol, but during the night, it went back up and she had shaking chills. Tylenol helped again, and I tried to make her warm by cuddling (I'm good at that--thanks to being the hot-blooded Italian that I am). She did eventually get up for about 3 hours, read some, then fell back to sleep. I tried to get her to go to the emergency room last night, but she refused. I did get her to call Dr. Balcueva's office this morning--and he's out of town! But, thankfully, they recommended she go to the emergency room. Heather wasn't working this morning, so she took her mom in. They ran a bunch of tests and decided to admit her to the hospital for further workup and antibiotics. Apparently, unbeknownst to me, a dumb orthopod, this is not an uncommon event in the lives of chemotherapy patients. We had not experienced it before (thankfully). It's a "neutropenic fever" or something like that. It is treated with antibiotics and fluids--she was pretty dehydrated from the fever. They also started the Neupogen again to build up the neutrophil count. She feels fine, and in fact, her belly pain is gone as of tonight. I was worried about sepsis, an infection of the bloodstream, so I'm happy they're checking for that and using a potent antibiotic as well. When we left at 10:00 tonight (Heather had stayed all day except for a short time to take a shower at home, and Michelle drove up from East Lansing after classes), they were taking her to get a followup CT scan of the abdomen.

She should be in the hospital (Covenant Harrison) until Saturday or Sunday, or possibly even Monday when Dr. Balcueva gets back. I was supposed to go to my Centurions Residency in Lansdowne Virginia in the morning (Friday) until Sunday night, but I've cancelled that. Fortunately, since I'm not working, I can spend all day with her, as will the girls. Her parents will be coming on Saturday instead of Sunday as they had planned, and Greg will be coming tomorrow night, so she'll have plenty of company.

Please pray for her rapid recovery. She needs her white blood cell count up as well as the neutrophils, so that will give you something specific if you want. Pray that she doesn't develop any infections.

Rejoice in our confident hope. Be patient in trouble, and keep on praying.

~ Romans 12:12, NLT



God Bless,

Tony

Monday, June 29, 2009

June 29, 2009

Anne was able to get her 5th chemotherapy treatment today despite having a neutrophil count of only 0.9 (it needs to be greater than 1.0 to get it usually). Fortunately, her white blood cell count was high enough (3.2) that Dr. Balcueva felt confident giving her the chemo. She tolerated it very well, as usual. He also started her on Neupogen, which is a drug that stimulates neutrophil production. She got her first dose today, then will get another tomorrow and then Wednesday. They'll check the neutrophil count again, and if it's still low, they'll keep using the Neupogen. Sounds good to me--she doesn't need an infection now because with neutrophils that low she wouldn't be able to fight it well.

She will be getting her repeat abdominal CT scan on the 16th or 17th of July and then we'll most likely be heading out to the Mayo Clinic again after that to meet with the oncologist, gastroenterologist and probably the colorectal surgeon as well. The response she's had to the chemo I think will have them rethinking things--while they thought about "palliation" I believe they need to think about "cure". They probably don't understand the power of prayer and how the Lord can work, but most of you do. Her response to the chemo has been nothing short of miraculous, and I thank you all for your prayers of intercession for us. God has been listening and working to rid her of the cancer.

Isaiah 30:41 says: “Those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.” This journey of ours is a lot like that. We have received our strength from the Lord. Right now, in fact, I feel like I'm flying on the wings of eagles, I'm so excited about the news we've had. To know that Anne is beating this cancer could not make me any more happy, and I thank God for all He has done and will do for us. Our journey will be tireless--we won't give up hope and give up on believing in His love.

1 Peter 4:12-13 says: "...don’t be surprised at the fiery trials you are going through... Instead, be very glad-for these trials make you partners with Christ in his suffering, so that you will have the wonderful joy of seeing his glory when it is revealed to all the world. " Yes, this is one heck of a fiery trial, but it has made us stronger. To know that Christ suffered for us, to make us forgiven to the Father, gives us great joy. We will be with Him some day to bask in His glory and spend eternity with Him. There is a hope and joy in knowing that God wants us to spend eternity with Him. I pity those who reject His truth and will never know what it will be like in Heaven. But despite this trial, Anne and I will not reject God. I just saw a movie required by my Centurions program: Tender Mercies starring Robert Duval. It was a bit slow, but there was one scene where his ex-wife comments after their daughter dies in a car accident: "Why did God do this to me?" Well, I hate to tell her, but God didn't "do this" to her, Satan probably did. But the response should be: "Thank you God for giving me this trial so I can grow in my faith and become a stronger Christian. I will continue to pray for your strength and love and protection." Trials give us perserverance, James says in his letter. I'd like to think that how we respond to trials shows God how truly serious we are and confident in His love for us. We should grow in faith rather than the opposite.

God Bless,
Tony

Monday, June 22, 2009

June 22, 2009

To those of you who are regular followers of this blog, I apologize that I have not written in a while. As I have mentioned before, rather than turn this into a blog about me, with political or even religious views, I had intended this blog to be about Anne, and her colorectal cancer treatment. I can happily report that she has been doing well enough that there hasn't been much for me to write about.

Last Monday Anne got her 4th chemo treatment. It went well, but she did have a bit more stomache cramping than she had had in the past. She did get better by Friday, thankfully, and her cramping has been a lot less since then. Unfortunately, she's convinced that chocolate cake (thanks Cathy M) and icecream may not be the best thing for her to eat. Today she got some labs again, and although most of the values were below normal, they weren't that bad, and will hopefully be high enough for her to get her chemo again next Monday--so keep praying. I'm convinced that the praying is working since her neutrophils haven't decreased enough for her not to get the chemo except that one time.

We had an appointment with Dr. Balcueva today. I now know what it's like for patients to wait 2 hours to see the doctor--but I have to say, it was well worth it. Our news was more than fantastic--it was remarkable--or whatever term may be better! Anne's liver enzymes have all returned to normal (3 out of 4) and the 4th is just a bit above normal. All of her other blood values have returned to normal. Interestingly, the CEA (carcino-embryonic antigen) which may not be elevated in colorectal cancer, was in fact 3600 (normal 0-6.0) when first checked--but it is down to around 200 now--a dramatic decrease! In addition to that, where her liver was palpable I think 10 cm below the ribs, is now not palpable at all. Yes--it shrunk in size. You gotta think that the tumors are responding to the chemo. Praise be to God!!!

Dr. Balcueva has recommended repeating her abdominal CT-scan to check the size of the colon and liver tumors. He has also recommended going back to Mayo Clinic for a repeat consultation to ask: 1) Do we continue the same chemo regimen? 2) Should we think about removing the segment of colon with the cancer? 3) If not, does the colon stent need to be replaced at some point in time--does it last forever? We may wind up going back there in mid-July, after chemo dose #6 and after the CT scan. All I can say is: THE PRAYERS ARE WORKING!!!!!!! KEEP THEM COMING!!!!

"But blessed are those who trust in the Lord and have made the Lord their hope and confidence. They are like trees planted along a riverbank. " Jeremiah 17:7-8

We have turned our trust over to God and He has responded with incredible results. I am fully confident that God has prevailed in our fight against this cancer so far--causing the liver tumors to shrink, and returning most of Anne's labs to normal. Maybe some of you think this could happen by chemo alone, but I'm not convinced. She has only had 4 doses of chemo so far, and yet her tumors are shrinking like crazy--and most importantly, she has remained mostly side-effect free during the whole process. That in itself is a miracle. Most people who have seen her remark on how well she looks--and she does. She still looks as beautiful as ever (even though her hair is getting thinner--but she still has a ton more than me!). Her weight is remaining the same, and her appetite is good. Other than having the cancer go away together all together--what more could you ask for.

I hope all of the dads out there had as good a Father's Day as I did. We went to church together (Michelle was home from East Lansing fsince Saturday), then ate leftovers from Famous Dave's for lunch. Anne and I did a bit of shopping and then I got to do some paperwork while the 3 of them gabbed. Then I got to cook dinner--and clean up! We had a great time Saturday night. After eating dinner at Dave's, we decided to go to the movies to see Up- the Disney Pixar film. If you haven't seen it yet, you need to go. It was very cute, but also a great film for adults, with a wonderful message. I had the 3 of them rolling at the theater when I had a hard time getting into my seat. The darn seats were too narrow! I'm about as fat as I've ever been, but that didn't explain my trouble. The darn cupholders on the armrests made the entrance to the seat too narrow for me to get in. Mind you, I played it up a bit--but it was indeed not easy to get in and out of the seat--and I must have had to do it a dozen times. I love making them all laugh. I think the other people in the theater were having fun with it too.

God Bless
Tony

Tuesday, June 16, 2009

June 16, 2009

I do have great news to report again. Anne was able to go through the chemotherapy again yesterday. Her neutrophil count had dropped down to 1.4, but that was high enough to get the chemo (it needs to be above 1.0). She did great as usual! She did have some stomache cramping last night but it's already gone. She was able and continues to be able to eat well. She was asked to be in another study--this time to see if blood levels of the administered 5-FU chemo drug are high enough based on height and weight dosing.



I received another email from Mayo Clinic concerning our participation in their fund-raising efforts. Apparently, they would like us to do another interview for them. No problem! We'll help them any way we can. We have high praises for the institution, and the work they do for people. I've heard other places are also great, and I'm sure they are, which is fantastic. We definitely need more places like it. I can only hope that this would be able to happen with "universal health care" but I have my doubts. I don't want to turn political here (too much) but my impression of government run health care (remember, I spent a year in Canada for my pediatric orthopaedic fellowship) is that it turns into something like the Secretary of State or Post Office--impersonal, poor service and apathy. That's not the way God wants us to take care of patients, but unfortunately it inevitably goes that way. In Europe, it is difficult to speak with the doctor unless you "bribe" him, wait times in countries with socialized medicine for care becomes longer and longer as a way to control costs, and quality of care doesn't necessarily go up. How many times have you heard of people going to these countries for care? Not many--most people are coming here, and for good reason. Well, enough of that or I could go on for pages.

I thought I'd pass along the following verse this time:

"Then your light will break forth like the dawn, and your healing will quickly appear; then your righteousness will go before you, and the glory of the Lord will be your guard.” Isaiah 58:8

I still find it amazing that people think I write well. But if indeed I do, and people who read this blog have been getting the (right) idea that I've turned into a "Jesus Freak" over the years---GREAT! We are supposed to be light to others in the darkness of this world, encouraging others ("Encourage one another and build each other up, just as in fact you are doing.” 1 Thessalonians 5:11) and trying to bring them to faith in Jesus. I recently ran across an old friend I have not seen in a couple of years. Amazingly, she had heard about the blog and had been reading it. "You need to teach me how to be as faithful as you are" she said. You betcha. I'd first start by praying--opening your mind to be receptive to God's word, and not being "hard of heart" like people you'll read about in the Old Testament. Trust that His word is true, and that most of all, He loves you. Try to spend a part of every day praying and reading. For books, I'd start by reading any of Lee Strobel's books ("The Case for Christ", "The Case for Faith", and my favorite "The Case for a Creator") and of course, the Bible. I'd pick an easy-to-read translation, like the New Living Translation--and probably a "Life Application" version which goes into more detail than the usual "Study" version, and has more "stuff" to read, like interpretations and questions for you. I'd start with the New Testament (probably the Gospel of John, or at the beginning with Matthew) and leave the Old Testament for later. I have read a bunch of other good books over the past 14 years since coming back to the Lord as well. I wish I had more time to read because I have a ton more sitting in my den just waiting to be picked up!

Please pray for Anne's continued good health and tolerance of the chemo, and that her neutrophil count continues to be high enough so that she can get her chemo. By the way, both her brother John, and Michelle's boyfriend Greg are doing well since their surgeries. See, prayer works!!!

Sunday, June 7, 2009

June 7, 2009

Anne continues to do well, thanks to all of your prayers. She has had essentially no side effects (a little tummy ache tonight has been about it). We were able to get to a few graduation parties over the weekend, and helped Michelle and Greg move (temporarily) into an apartment in East Lansing. Michelle will be taking 3 classes at Michigan State University this summer (and graduating early so she can do her student teaching in the spring--instead of after school would start in the fall--and hopefully be available to GET A JOB!), and Greg will be working in Lansing this summer and starting at Michigan State Law School this coming fall. Anne made it through all events without so much as taking a nap! We even went to dinner to our friends Andy and Sharon Saturday night and watched the Red Wings cream Pittsburgh 5-0. Go Wings!

Anne's brother John is doing very well since his back surgery. No complications there and he's home recovering. Anne's parents stayed until last Wednesday to take care of Anne--and thankfully didn't have a lot to do. Greg is also progressing from his surgery--healing very well.

On the way home from Andy and Sharon's Saturday night, I heard the song "God You Reign" by Lincoln Brewster and Mia Fieldes, woke up singing it, and then we sang it at church. Coincidence? I don't think so. Words from verse 2:

My song remains
God you reign
You hold my life
You know my heart
And You call me by name
I live to say God You reign

God does reign, and He is so incredibly powerful. He can wipe out Anne's cancer if He wants (and I know He will), and He can read what is in our hearts and minds. I give it all to Him. I want to do His will. Right now I am struggling with trying to figure out what He wants me to do. I think my mind is so full of taking care of Anne, that I haven't been able to spend the time with God that I need to be able to hear His voice about my own discernment. It is not an easy thing to give up control, but I know that is what I have to do to hear His voice. I'm so used to running my practice and taking care of everyone else, that I usually leave little time for taking care of me (mentally and bodily--hence the "Buddah Belly"). So maybe I'll ask you all to pray for me too (just a little--I want most of the prayers to keep coming for Anne).

Speaking of prayer--wouldn't you know that was the subject of today's sermon? Read James 5:13-18 if you get a chance. It is perfect. I like verse 15: "And the prayer offered in faith will make the sick person well; the Lord will raise him (her) up". And even Psalm 46 was mentioned. Verse 5 (which I now love): "God is within her, she will not fall." Although I think the psalmist was talking about a city here, I'll assume he was also talking about Anne. God IS within her, and she will not fall. She has been raised up by all of your prayers--God is our fortress, our refuge and strength. God, You reign!

God Bless,
Tony